"To describe my mother would be to write about a hurricane in its perfect power." ~ Maya Angelou
I write today from a mother's perspective. As I feel I'm twirling into an angry hurricane with a calm as blue blazes center...as I go to battle for my children's educational welfare, I hope one day my children think of me in this light, that I was a perfectly powerful hurricane working on their behalf. They are my babies and no matter how old they get, I will fight until my dying breath for their well-being.
Within all three of my children, I see the emotional backlash from the consumption of certain foods. If anyone tries telling you that food sensitivities had no effect on thyroid health, I hope you laugh in their face. Nutrition most certainly does affect thyroid well-being. As of yesterday, I requested that spaghetti-o's no longer show up in our household. While my family unit adjusts to my new work schedule, one where I am not available to cook meals, we all recognize that speedy food choices produce negative effects on our emotional well-being. They are banned.
Case in point: after collecting my children from my mother's yesterday, we got home and I started giving directions about household chores. As I am cooking dinner, I needed someone to work on dishes...and my eldest practically imploded. She was rubbing at her hair and face and was quite overwhelmed. That's one of those fascinating attributes of anxiety...there is nothing going on in the environment to cause you to be that overwhelmed. The dishes weren't in excess of numbers. I wasn't yelling or mad about it. I had agreed that she could plug herself into headphones because music always calms her, but to no avail. She abandoned her post several times where I had to coax her back out. She didn't really feel like eating dinner, either. It took her some hours before she was herself. She has been testing for thyroid health and her numbers are "good" but I witness that food affects her all the same.
When I questioned my little bird on what she ate for lunch, she explained the usual, a sandwich. That didn't add up because I hadn't hit the store for bread yet and we were out of bread the day before. So, she was a tad disoriented and I questioned again a little later and she stood there puzzling before answering spaghetti-o's. Ok, no more. I had a Big Red zero the other day that someone had bought me and I was a crying mess...there IS something in the red food dye that the body cannot deal with, even in one meal.
I witness thyroid health issues with my middle child as well. Her condition is more severe and it took me awhile to even locate a pediatrician who would run the gamut of tests to honestly verify the root issue. While my mother's instinct screamed thyroid, the first pediatrician told me she just needed a psychiatrist. Oh, gloves on. I've been told that and I knew my symptoms weren't all in my head.
I got a letter from the school yesterday saying that my daughter's eyesight is 100/100. I had a similar letter the previous year with 100/40. In second grade, at the school's behest, I took my daughter to an ophthalmologist and she was tested with the results of 20/20 vision. Same conversation occurred with the third grade teacher and the same results were produced at the doctor's office. Another letter came in fourth, which I ignored because I'm spending almost $90 to run these tests that go nowhere and have no credence. I got another now that she's in 5th and I've scheduled yet another appointment (first available is December, of course).
My message isn't that I don't believe the school. My message is that I know how my thyroid loves to toy with my vision. If my thyroid isn't properly taken care of, I have night-blindness and driving at night is a nightmare...but then at other times, I see perfectly at night. It comes and goes depending on certain factors. During this transitional time where I'm embarking on a new career, I have learned (after the fact) that my daughter hasn't always taken her thyroid vitamins and I learned from a teacher she ate a full-sugar cupcake at a party.
She is of an age to make decisions on her own and I'm not around as much to nag her into submission. She has to made choices on her own, and since she has the power to do so, she will give into temptation like any of us would, like not taking her vitamins because there's an aftertaste. She hasn't learned that vital lesson yet that your mother will eventually find out...and when I get home, I can tell she did not take her vitamins because she's a raging emotional mess that is difficult to communicate with. The more important I lesson I want for my daughter is that your body is with you all of your days; you must take care of it so that you can make sure you have a life you can enjoy. Was the taste of that cupcake worth the hours you cried the rest of the day?
Apparently the school doesn't have to share the letter I gave both the principal and the special ed department (before school began) with the teachers (her homeroom teacher was unaware of the no-sugar dietary needs), nor does anyone besides the cafeteria have to read the documents I filled out at the beginning of the year detailing food sensitivities. Why did I write those things out? Why did I get a letter from the doctor with the new diagnosis to provide the school and my daughter's therapist? For fun? Here's where the perfect storm of a hurricane mother comes in.
My message is that I'm questioning whether not my daughter's nutrition was where it was supposed to be the day of that eye test. With last year's test, I took that information as a sign that more was amiss. I added it to my arsenal to push for a new diagnosis, that my daughter is not ADHD but rather fighting thyroid dysfunction. Since the first pediatrician did not see symptoms of a thyroid storm, we were basically sent on our way with no help. I've spent way too many years of my life in thyroid hell to allow my child to continue walking through it herself. So what if it's not a thyroid storm...if it were, it would mean we missed the boat and didn't do something before the thyroid started dying. That's what a thyroid storm is, the thyroid giving its last stand before dying.
I spent too much time and energy locating a diagnosis to not have the school do their part for her. I will fight for my little girl's well-being. I do not care if others understand thyroid health. What matters is that I do. It's not a well-known health condition. Most doctors haven't the foggiest clue about thyroid dysfunction and refer to antiquated and limited requirements. Thank heavens my thyroid doctor does not follow the traditional medical community's approach to thyroid health. Thank heavens I located a pediatrician who keeps himself well informed with up-to-date thyroid research.
Easily, thyroid dysfunction in it's myriad of forms can produce over 300 symptoms, which means no two thyroid patients are going to be identical. That is quite apparent within my family. We have similar thyroid symptoms, but in other areas, we don't. I've had doctors inform me, "Thyroid problems don't cause hypoglycemia or vertigo." Bet you they do. They're some my symptoms, but no one else but me experiences vertigo. I just need one more physician to tell me my thyroid symptoms are not my symptoms. All they do is show me that I'm firing them as my physician or my child's physician and I will locate a professional who is knowledgeable in thyroid health.
It's disheartening knowing that I have to maintain this hurricane within. It can be exhausting. Just when you think you can rest, the storm must rise again. You have to fight for yourself or for your family member's health. It is NOT okay to suffer or to allow another to suffer. It does not matter who understands. The fact remains that if YOU understand why these problems occur, you know what to do to help remedy the situation. I am quite thankful to have the support team I have for myself and for my daughter. There are doctors out there who are knowledgeable about thyroid health. Be okay with firing a doctor who isn't helping you. There are so many books and websites with quality information on thyroid health. Inform yourself and therefore empower yourself.
I hope that whoever is reading this, you are able to harness that perfect hurricane inside and fight for your health and the health of those you love.